Showing posts with label Blogging with a Chronic Illness. Show all posts
Showing posts with label Blogging with a Chronic Illness. Show all posts

Thursday, May 23, 2013

How To Keep Going When Your World Turns Upside Down


When asked to write the post that I normally write on Tuesday for Holley Gerth's blog about God-sized dreams,  I was weary and I did not have what I needed to write;  however, I realized as I wrote my blog post for "Balancing Life Changes", that I had said exactly what I needed to say.  Also, I felt compelled to connect there even though it is Thursday.  Please join us in our God-sized dream blogs, because we are sharing our hearts about God leading us to fulfill His purpose for our lives, with all the ins and outs, and ups and downs.  The ladies over at Holley's blog are encouragers and lovers of God.  And, Holley has done a good job of listening to the Lord in how to get us tuned in to what He has for us.
Have you ever noticed that children know exactly what to do when they are
worn out?  Our grandson came into go potty;  and then, he sacked
out in the bed, wet bathing suit and all.  I love this picture.



Do you ever have a week or two that seems to turn your safe little world around?  Your routine is 

upside down and your body is gasping for energy.  Your brain is working, but it has slowed 

down to a 20 minute lag.  Everything seems to be painfully slow, and you know you need to take life at an easier pace. 


Even now after years of illness, I get these guilty,  nagging, little feelings when I don't do 
everything I consider to be my work, my calling, my responsibility.  Does this happen to you, 
and what do you do about it?  Are you backed into an "I have to do it corner", whether it is 
detrimental to your health or not?  I have been there, and I ended up getting more ill, because
 I have never liked giving in to my illness.  At least, that is how I saw it.  I had to be stronger
 than that.  If my body was not going to cooperate, then I would trust in will over matter.  

I am not saying that I stopped praying.  I still trusted in God, but I also thought I had to push
 through to be well and to please Him.  However, at that point, I chalked most of my problems 
up to my liver, depression, fibromyalgia, and gaining weight.  I did not realize that my thyroid 
was compromised and I had multiple things going on in my body that added up to Chronic
 Fatigue Syndrome.  Actually, now when I look back at the onset of my illness, probably 
most of my problems were Chronic Fatigue Syndrome, including the depression.  It took 
total collapse to finally find out what was wrong with me.

Some people think they are weak because they cannot get well or work through these diseases/syndromes.  I would like to suggest most people are stronger than they realize.  
They have hung on to life, trying to work  with bodies that fight their every effort to contribute 
to the lives of their family and community.  The people I know with Fibromyalgia and
 Chronic Fatigue Syndrome are not layabouts.  They are participators and leaders, who
 have fought to take care of their families, do their jobs, volunteer in their communities, 
and minister in and out of their churches.  Time after time, they have fought to push past 
their limits, because they are strong in spirit, and perhaps a little stubborn about giving into
an inconvenient, pesky illness that is in the way of their duties.

Do you get tired of fighting, of trying to act well when you are ill, ill, ill?  Yes, I do too, but that is normal.   Is there a better way?  I think so, but I did not come to this frame of mind instantaneously.  And I have to admit to growing tired of the facts of my life at times, especially when it keeps me from so many things I consider important or 
enjoyable.  However, I am human, and it is absolutely normal to have moments of weariness.  What I have learned is to experience my life in the light of God's love for me  and His call on my life to be light.



In 2 Corinthians 12:7, Paul speaks of 
"a thorn in the flesh."  I recently read an excellent article in gotquestions?org.  What I have always believed about this passage was elaborated on in a fashion that I fully agree
with.  It has always been my belief that even though God 
was fully able to heal Paul, He did not do so for a reason.  However, we do not know what this thorn in the flesh was. 
 It could have been disease, pain, his failing eyes,
 or a person.  We know that Paul endured the harsh
elements of nature and stonings.  For all we know,
 his past could have been a psychological torment to him, 
even though He knew he had been cleansed by the blood of Jesus Christ.  I agree with the answer 
I read in gotquestions?org.  We do not know what his torment was, because the generations
 following needed to know that there is a truth here for whatever our weaknesses are.


 In 2 Corinthians 12:8, we are told that Paul sought 
God to release him from this thorn in the flesh three
 times.  But God did not release him, so for all of 
you who believe God still heals and you think you 
have not been faithful in believing strongly enough, 
let go of that thought.  Could God have another 
purpose in letting you suffer?  Could it be He
has not answered this particular prayer for a reason?  Do you need to learn contentment?  I ask that, because
that is one of the things I have learned.  

Be assured, I am not suggesting that God afflicts 
us with pain and disease.  I believe pain and 
disease is in this world, because it is a sinful
 and fallen world.  There are no men or women 
in this world that have not fallen short of God's
 glory.  Only Jesus is perfect, and He is 
the Son of God.

So why did God let Paul continue to suffer?   God said to him, My grace is sufficient for thee:  
for my strength is made perfect in weakness (KJV, 1 Corinthians 12: 9a).   And what was 
Paul's reaction to that?  Read what he said, Most gladly will I rather glory in my infirmities, 
that the power of Christ may rest on me (KJV, 1 Cor. 12:9b).  So, is that a reason for 
living in contentment and knowing there can be a purpose in suffering?  Yes!  So why do we put 
ourselves down because our bodies are weak vessels?  Instead, why do we not look for a reason
to live and rejoice in all things, even in suffering.

I know it sounds like a paradox.  Perhaps, it is.  However, I can tell you I have found my reason 
for living, and this it what keeps me going.  It has also kept me from the proverbial beating myself up
 that occurred, as I constantly battled the shoulds in life.  I always had shoulds that I thought were necessary to be the perfect wife and perfect daughter of God, not to mention the perfect daughter, 
student, teacher, mother, and grandmother.  Even though, I fully believe I am imperfect and only 
could come to Christ, believing in Him and the cleansing of his blood, because of his atonement 
for my sins -- even though I do not believe that I am saved through my works,  perfectionism 
was constantly a part of my striving.  It took being completely broken to the point I wanted to die, 
to be free of this;  and, I have continued to remember the foolishness and fallacy of perfectionism 
from that time forward.


Therefore, I no longer need to push myself to the point I cannot function.  If I do, it is not on purpose, but because I lost sight of how much energy I had to give.  Perhaps perfectionism, once it has been instilled in the brain since childhood, is also a thorn.  One has to tamp it down and deal with  it.  The thing I want you to know is that it is not wrong to rest, to take a day off,  to lie down in the bed because your body requires it.  A wonderful counselor told me that "resting is doing something."  I often have to remind myself of that, as my busy brain whirs around considering the intricacies of life and of course -- all the things that need to be done in my little corner of the world.  

I cannot even begin to tell you how long it took me to not feel like I was sinning, because I was 
a minister's wife that could not get up in the morning to go to church.  Never mind, that I felt like
 I had the flu everyday, and I could barely take a shower.  In fact, there are many days I have 
to skip the shower.  OK.  So I still have trouble with the church part, but I have tried to do things
that I used to do, and I always end up back in the bed and the recliner.  If you don't agree with 
me, you are free to go to my facebook page and tell me why or comment here.  But I am through 
with comparing myself to other people.  I will tell you that in advance.  And if I think you say 
something contrary to God's word or you are unkind, I freely reserve the right to delete the comment. 
 Or, I might just tell you why I think you are right or wrong.



It was not my intention to be wordy here.  I am almost shocked that I had so much to say about something I intended to be a short post.  But then again, I tend to be constantly amazed at my calling to write having come out of incubation from years of chronic illness and pain.  I rejoice in God, my Savior.  He is the completer of my soul, the comforter and the Father that has been with me as long as I remember.  It is in Him that I am whole, even when my body is in broken pieces.  It is my prayer that you will know Him as the completer of your soul, for without Him, we are left to wander in confusion and loneliness.

For more information on how God will give your soul rest, click 
on this:  He Will Give You Rest.  For information on how God 
will make you complete in Him, read this: Our Hope:  Eternal 
Life  or Finding Eternal Peace.  God bless you.  If you are 
reading this, you are in my prayers -- even though I don't know
your name, God does.

Thursday, March 28, 2013

Fibro-Fog, Blogging, and the Delete Button

I have started calling the Brain Fog of Fibromyalgia, Fibro-Fog.  I don't know if I made it up or got it from someone else.  And I must have a very bad case of it right now;  also, I feel kind of sick at heart.  It will go away.  Don't worry about that.  I don't plan to live in the past, but I have to tell you what I did.


So here goes -- I just deleted every comment on "Living Better With An Invisible Illness".  And, I cannot take it back.  Therefore, if you decide to come back and look at a comment, I am very sorry, because it is not there.  I loved the comments.  They were warm fuzzies that helped me know I'm on the right track and connect me with you.  

How did I do this awful thing?  There is a nifty little page that says Comments, where the blogger can delete spam and nasty awful comments.  I have gotten plenty of spam and robotic stuff, but not any nasty awfuls.  They are all listed on this page.  For some reason, I decided I could delete this page like you do when your email page gets too full.  If you have a blog, don't do it!  I know it was the fibro-fog, and I don't think I will ever do that particular thing again.  


    OK. 
 Cry, cry.  I'm almost
   over it.     
I still love
 you, dear 
  friends.
 I never realized delete buttons could be so dangerous.

Friday, March 15, 2013

Blog News - Spam Spoilers

Image Courtesy of[Stuart Miles]/FreeDigitalPhotos.net

If you are a regular blogger, you probably get tired of Anonymous comments from strange sounding URL's.  Most of these go in my Comment Spam folder, but I got curious why they would even bother.  

One thing I did not do was click on them -- no telling what kind of annoying malware might find it's way into my computer.

Being the curious soul I am, I wanted to find out more and I found a blog post that was both informative and readable.  Also, I was encouraged to know I was doing the right thing in staying away from these things.

Also, that is why I have had the annoying little thing you have to click on before can post your comment activated.  (please excuse the brain fog -- is it called captcha?)   I have been getting a lot of these Anonymous messages, and I don't have the time or energy to go through every one in my email.  One thing I have noticed is that when someone who is very cautious on the internet and would rather post anonymously posts, Blogger knows if it is from a legitimate source -- amazing!

Another thing is that the notes written by the robots are redundant and strange.  It is easy to tell they didn't read your blog at all.  They just want you to click on their ad.

If you want to read the blog post I read on these annoying robotic sites click on the following :
Spam Spoiler.

Saturday, January 19, 2013

Blog Planner - The Calendar


One of my favorite bloggers is Beckie Farrant, of Infarrantly Creative.  She is smart, generous, and superbly creative.  Also, she sometimes shares great information for bloggers, and gives it away free.  Did I tell you that I appreciate what I have learned from reading her blog?  I guess that makes her a great teacher too.

Today, I want to share with you something that I tried out before Christmas, that I realize I desperately need now.  Beckie has a free printable blog calendar you can download.  I am keeping mine in an attractive notebook, but you may want to follow her directions for a useful and professional planner.  I am hoping I don't forget my new ideas before I get the first few months of this year printed out.


~~~~~~~ Don't forget to check out the rest of Infarrantly Creative, especially if you like do-it-yourself projects, that are decorator quality. ~~~~~~~

Monday, November 26, 2012

Learning How to Have Presence on the Web

Which way do I go?  What does it all mean?
  What do I need?  Can I afford it?
Image Courtesy of  [Stuart Miles]/ FreeDigitalPhotos.net
For someone who is learning step by step On-the-Job-Training, making decisions about the great world-wide web can be daunting, especially when you have nothing except basic computer training.  However, I have to admit, the makers of computers and webpages, etc.  have made it quite easy for us trainees to figure it out.  I often think how proud my son would be if he could see all the stuff Mom and Dad have learned about computers.  Maybe he is in heaven saying, "I told them they would love it.  I told Mom she would be looking recipes up on the computer."  I bet he didn't realize I would have my own blogs.  Have you figured out by now, I love using my computer and the internet?

For several weeks I have been traveling the internet and trying to figure out the stuff about having a website or your own domain.  To be honest, I am not sure if they are the same thing.  Maybe, some of you techies can explain it to me.  Finally today after browsing, I called GoDaddy.com, because I just did not know what to do.  I was impressed with the answers and the helpfulness of the young man I talked to.  And I know, I still have so much to learn.  The one thing I have decided is that I am not ready for my own website -- maybe, later.

It is not worth the hassle and potential headache I would get right now.  I got stressed yesterday trying to figure out what to do -- no Fibromyalgia brain fog, just felt indecisive and rightly so.  I am glad I didn't jump into anything.  I have enough going on with the Christmas season and my home.  I haven't even decorated yet.  So, I am giving myself a break, and going to continue the step by step process.  I am going to continue with Blogger.  Blogger I love you.  You make it so easy to blog.  Thank you.  I don't know if they will see this, but it has been wonderful.  I am thankful for the ease I have had to break into blogging and for the great daily writing habit I have been developing -- just what I need to write my book.